Lobular Breast Cancer Advocates Urge Action: Meeting with Health Secretary Highlights Urgent Need for Research

A passionate group of campaigners, representing individuals and families impacted by lobular breast cancer, recently met with Health Secretary Wes Streeting to advocate for increased research and improved treatment options for this often-overlooked form of the disease. The meeting underscored the urgent need to address a cancer type that currently lacks specific, targeted therapies.
Lobular breast cancer, accounting for approximately 10-15% of all breast cancer diagnoses in Australia, presents unique challenges for early detection and effective treatment. Unlike the more common invasive ductal carcinoma, lobular cancer originates in the milk-producing lobules of the breast, rather than the ducts. This often means it doesn't present as a distinct lump, making it difficult to detect through self-exams or even routine mammograms. Consequently, it's frequently diagnosed later, potentially impacting treatment outcomes.
“It’s incredibly frustrating,” explains Sarah Miller, a campaigner from Sussex who was present at the meeting. “Lobular cancer can be sneaky. It often spreads in a diffuse pattern, making it harder to spot on scans. We need more research to understand how it behaves and develop treatments that specifically target this type of cancer.”
The Challenges of Lobular Cancer
Several factors contribute to the difficulties in diagnosing and treating lobular cancer:
- Diffuse Growth Pattern: The cancer cells tend to spread in a single-file pattern, rather than forming a mass, making detection difficult.
- Lack of Distinct Lump: The absence of a palpable lump can delay diagnosis, as women and their doctors may not suspect cancer.
- Mammogram Challenges: Lobular cancer cells often don't cluster together in a way that's easily visible on mammograms.
- Limited Treatment Options: Currently, treatment approaches often mirror those used for other types of breast cancer, but there's a growing recognition that lobular cancer may require a tailored approach.
The Call for Research
The campaigners presented a compelling case to Health Secretary Streeting, highlighting the need for dedicated research into lobular cancer. Their requests included:
- Increased Funding: More funding for research into the biology of lobular cancer, its unique spread patterns, and potential therapeutic targets.
- Improved Diagnostic Tools: Development of more sensitive and specific imaging techniques to detect lobular cancer at earlier stages.
- Targeted Therapies: Research into therapies that specifically target the characteristics of lobular cancer cells.
- Awareness Campaigns: Public awareness campaigns to educate women and healthcare professionals about the unique challenges of lobular cancer.
Health Secretary Streeting acknowledged the concerns raised by the campaigners and pledged to consider their requests. He emphasized the government’s commitment to improving cancer outcomes for all Australians. “We are listening,” he stated. “And we are determined to ensure that all forms of breast cancer receive the attention and research they deserve.”
The meeting represents a significant step forward in raising awareness of lobular breast cancer and advocating for improved care. The campaigners remain hopeful that their efforts will lead to meaningful progress in the fight against this often-overlooked disease, ultimately leading to better outcomes for women diagnosed with lobular breast cancer across Australia.